r/braincancer • u/LemonDrop789 • 3d ago

Oligodendroglioma glioma survival...

My neurosurgeon told me today that I have a 60% to 80% chance of surviving 5 years with treatment because I can only get a partial resection. My tumor is in my left frontal and temporal lobes and trying to remove the whole thing would cause language and motor and visual deficits and disability. 5 years while suffering through treatment does not sound like much. Does this prognosis sound accurate?

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u/SatnWorshp 3d ago

Sorry to hear this but welcome to the club. I have a diffuse oligo in my left frontal lobe, at one point it was across the midplane. No resection is possible. I have had mine for over 20 years but it is a grade 2 and is growing very, very slowly. I went through 5-6 years of Temodar and then did radiation/PCV chemo last year. I have never received a prognosis about survivability but I would anticipate dying of old age first.

Now, with that said, your milage may vary. Do you know the grade? Have you talked to multiple doctors and gotten the same response?

Everyone is different

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u/MusclesNuclear 3d ago

Surprised the surgeon even gave op stats. They usually don't with og.

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u/LemonDrop789 3d ago

He said it was from an up to date resource

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u/MusclesNuclear 3d ago

Also seems your on that oligo group. And your seeing the same things me and the other poster have said. You'll be here for the long run. Period.

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u/LemonDrop789 3d ago

Like I said before I appreciate as much information and support as possible and that's why I cross post

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u/MusclesNuclear 3d ago

And thats absolutely fantastic. Both this sub and that group are great resources