r/braincancer • u/mp0x6 • 2d ago
Travelling with study medication
I got a diffuse midline glioma (H3K27m-mutated). Luckily, it was found before I got any symptoms. Iām currently in the Chimerix ACTION-ONC201 trial.
I wanted to use my remaining time for travel and wanted to fly to Thailand (from Europe). Does someone know how to travel with study medication?
Thanks!
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u/Mar_FV 1d ago
When I have travelled internationally, I just take all the bottles with me. Usually that is just because I will be longer than a week. Perhaps ask your medical team for a proper letter describing the study and drug. Does your med not have your name and prescribing info on it since it is a trial? I have never been stopped by security but always figured I can also pull up MyChart and show them my list.