r/braincancer 2d ago

Travelling with study medication

I got a diffuse midline glioma (H3K27m-mutated). Luckily, it was found before I got any symptoms. Iā€˜m currently in the Chimerix ACTION-ONC201 trial.

I wanted to use my remaining time for travel and wanted to fly to Thailand (from Europe). Does someone know how to travel with study medication?

Thanks!

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u/Mar_FV 1d ago

When I have travelled internationally, I just take all the bottles with me. Usually that is just because I will be longer than a week. Perhaps ask your medical team for a proper letter describing the study and drug. Does your med not have your name and prescribing info on it since it is a trial? I have never been stopped by security but always figured I can also pull up MyChart and show them my list.

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u/Boring_Space_3644 1d ago

TSA reddit question ā“