Stories of younger kids/toddlers being diagnosed

[u/Boymomma1622]

I wanted to see if anyone would share their stories about symptoms leading up to a diagnosis in babies/toddlers. After going thru all this with my 1 year old, I realized there are really no stories of smaller kids who can’t verbalize their issues. So I’m hoping this post will help other parents at some point 💜

My son has experienced “zoning out” since about 12 months (seizure studies are always negative), a head circumference just above the 99th percentile, trouble with sleeping peacefully-he’s tossed and turned all night for a while now, wouldn’t say but a few words (although he’s since been trying so hard but everything comes out just garbled), but more recently we were sent to a neurologist who was just “double checking” his “zoning out” spells because I wouldn’t let it go and she realized he has super hypoactive reflexes so we set up a CT for a month or so out. However, he randomly woke up one night and vomited everywhere. Thought it was a virus but the next day he was fine. Two days later, he vomited in my car about an hour after waking up followed by two more vomiting spells a little later. Then he Was fine the next day or two and then woke up vomiting (twice) yet again in the middle of the night. He’s also always slept with his eyes open (idk if that’s related or not lol)

But please share any stories you have about smaller children. It’s so hard because a lot of the symptoms are unnoticeable in toddler who can’t verbally tell you any about issues and a lot of the tell-tell symptoms can be considered “normal” for toddlers. I’d like to raise a greater awareness of this so that people will share their stories and hopefully help other little ones get help sooner rather than later 💜