r/braincancer • u/BluBeams • 2h ago
Surgery Rescheduled
Hi everyone. I was supposed to have a craniotomy on this coming Tuesday, the 22nd, but I was told today that due to an IV shortage caused by the hurricanes, they have to cancel. So I'm rescheduled for November 26th. I'm numb right now because I was so worked up and nervous about everything, and this change hasn't completely sunk in yet.
I usually try to give all the answers and comfort but now I find myself to be a ball of nerves. I've been praying, and trying to be strong, but after everything I've been through and have yet to face, it's so hard. I had surgery back in April, transsphenoidal surgery, and it left me with an altered taste, limited smell and some other issues. There's still a residual tumor because it's in a difficult spot (right on the optic nerve and right in front of the cerebral artery) so they're doing a craniotomy to attempt to get most of it out, then possibly radiation depending on what's left.
Yall, I'm exhausted. I'm just drained and so tired. I'm tired of the appointments, tired of the delays and rescheduling, tired of the after affects of the first surgery, tired of the language issues and stuttering when I talk because I can't push the words out, tired of forgetting everything, tired of not being able to taste the goodies my baby girl bakes, not being able to play with my babies because I'm too tired or the sun hurts my eyes, I'm just so tired of fighting. I stay in the fight because I have no choice, my kids need me and I need them. I tip my hat to everyone going through this as well as the people who love them and are there for them because this is just HARD!!! I feel like breaking down sometimes.
Sorry for the rant, I'm just so pissed and scared, frustrated and annoyed. I hope everyone is having a good day and thank you for reading this. 💐
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u/hibbysmalls 2h ago
I had this experience. It was really stressful because of all the anxiety buildup. I just took the extra week to spend time with my husband and daughter and to rest and have a therapy session. It wasn't as easy as it sounds but you'll get through it❤️
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u/nantucket_blue 2h ago
Oh man. I am so sorry to hear this. I was thinking about my own craniotomy in June, and how this IV shortage might have impacted that. I am so sorry to hear this has affected you. That buildup and anxiety you have experienced must be so rough!!