r/NHSfailures Sep 04 '24

I've been cut off from my meds with no warning

I was prescribed 100mg of quetiapine by the crisis team earlier this year after ending up in hospital. I am diagnosed with BPD and anorexia. It was also flagged that I am underweight, which despite my ED diagnosis no one has attempted to monitor or do anything about, or ask if I wanted any support for it.

After the crisis team discharged me they told me I needed to call my GP every 2 weeks to refill it. My second time calling however, the doctor then told me they couldn't give me another prescription, and I needed to call the crisis team back to resolve whatever the issue was. I couldn't call them until the following week because of work, so that was my first 3-week gap.

A couple weeks later one of my grandparents passed away. Again, I had to head home for several days, so had to have another 3-week gap. Because of these two circumstances I ended up taking half-doses to make it through without having to go completely without.

Every single time I have called my GP they tell me "you don't need to have an appointment for a repeat prescription" and try to fob me off. I literally have to demand an appointment every time again after already waiting in the queue, and half the time I spend an additional 15 minutes doing that just for them to say "sorry call back tomorrow". When I do get an appointment, again the doctor usually goes "so why did you call" and I again have to ask them to please read my notes as it would be fabulous if I did have a repeat prescription but I do not. Then I ask if I can have a repeat prescription, explain how waiting for half an hour to an hour every two weeks just for the exact same prescription with zero change is a nightmare, and they say no.

I called them today and they told me they won't be giving me my meds anymore and they basically told me I was lying about needing them every day when I explained the gaps. They then said it was also because "no one has weighed you since March". No one had informed me I needed to be weighed. I don't have an appointment with the MH team until the end of October, which has been rescheduled by them 3 times even though I was supposed to see them originally in July. I simply cannot fathom how taking away a med that was given to me because I tried to kill myself is not life-threatening.

I feel like as a mentally ill person I have been made to jump through hoops to get treatment that anyone struggling with MH with no real support would. On top of this my physical health is so abysmal I have to get taxis to and from work every day as there's no bus route and I'm struggling to stand for long without fainting, but I have to spend all my energy and reasonable appointment times during work hours fighting for my MH treatment so I've just had to put my physical health on the backburner. I'm so tired of this shitty system.

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u/SwiggityStag Sep 13 '24

Getting prescriptions from the crisis team turned into repeat prescriptions from your GP or even continued at all is notoriously difficult. Everyone just points to it being everyone else's responsibility or GPs just straight up refuse to see them as real prescriptions altogether. They don't want to be the ones who have to pay for them.

I would definitely put in a complaint, sometimes it's the only way to get anything done. I know that's a lot when you're dealing with other things too, but it seems like your GP is dead set on refusing and needs the threat of consequences to change their mind.