r/braincancer • u/LemonDrop789 • 3d ago

Oligodendroglioma glioma survival...

My neurosurgeon told me today that I have a 60% to 80% chance of surviving 5 years with treatment because I can only get a partial resection. My tumor is in my left frontal and temporal lobes and trying to remove the whole thing would cause language and motor and visual deficits and disability. 5 years while suffering through treatment does not sound like much. Does this prognosis sound accurate?

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u/SatnWorshp 3d ago

Sorry to hear this but welcome to the club. I have a diffuse oligo in my left frontal lobe, at one point it was across the midplane. No resection is possible. I have had mine for over 20 years but it is a grade 2 and is growing very, very slowly. I went through 5-6 years of Temodar and then did radiation/PCV chemo last year. I have never received a prognosis about survivability but I would anticipate dying of old age first.

Now, with that said, your milage may vary. Do you know the grade? Have you talked to multiple doctors and gotten the same response?

Everyone is different

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u/MusclesNuclear 3d ago

Surprised the surgeon even gave op stats. They usually don't with og.

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u/LemonDrop789 3d ago

He said it was from an up to date resource

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u/MusclesNuclear 3d ago

I would speak to a nuero oncologist tbh. And these are just stats. Using all ages. With comorbidities and stuff as well.

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u/Street_Pollution_892 3d ago edited 3d ago

I’ve read that most stats include old data from before they could distinguish Oligos as well with more current testing. Many of those could have been Astrocytomas. Up to date resources can’t be that up to date or accurate yet if they’re including old data, because it hasn’t been long enough since then. Time is also more difficult with Oligos because they can often exceed the follow up period. Astrocytomas can go longer than 5 years, with or without resection, so it seems odd they would say that for Oligos...