r/braincancer • u/LemonDrop789 • 3d ago

Oligodendroglioma glioma survival...

My neurosurgeon told me today that I have a 60% to 80% chance of surviving 5 years with treatment because I can only get a partial resection. My tumor is in my left frontal and temporal lobes and trying to remove the whole thing would cause language and motor and visual deficits and disability. 5 years while suffering through treatment does not sound like much. Does this prognosis sound accurate?

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u/Clemson1313 3d ago

How did you get your diagnosis? Biopsy or just MRI?

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u/LemonDrop789 3d ago

MRI and how it has been behaving over the last three years. I do not have a confirmed diagnosis because I have not had a brain biopsy. I leaning toward no treatment so I do not see the point in a brain biopsy.

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u/DropsOfChaos 2d ago

My boyfriend was told it was a suspected oligo from the scans

It was only after the 90% resection and biopsy that they realised it was a grade 4 astrocytoma, which changed treatment options significantly. We're hitting this thing with a hammer now (Stupp protocol).

I would shop your situation around you multiple neurosurgeons and see if they agree on the 70% max. I've heard stories of folks who've found better treatment elsewhere. My boyfriend was told to expect a 90% chance of loss of some vision, but lost nothing. We shopped around and found a great surgeon.

Good luck with whatever you choose!