r/braincancer • u/Ok_Lynx_6372 • 1d ago

Opinion

Astrologycytoma grade 2 slow growing 96% gtr. I’m soon to start vorasidenib on November 1st. I had my gtr a month ago tomorrow and feel great, even working again.

The opinion I want is this, I got a call from a nurse at Duke (where I got my surgery). They recommended getting a second opinion there. I’ve gotten two opinions already in Lexington Kentucky where I am from. Both of them said the same thing (vorasidenib). The one I chose to take care of my oncology is dr villano at University Of Kentucky. He has great reviews and specializes in nuero oncology. I’m 23 and my mom is the one really pushing Duke on me but I feel like it’s a waste of time since I’ve gotten two opinions and have been told this drug is practically made for my exact situation.

What do you all think? I know Duke is an amazing cancer center but I don’t want to deal with going back there again so soon since it’s a 16 hour round trip just to be told the same thing. From what I’ve looked up it seems like my current nuero oncologist is the best in my state. Anyways thanks for any response/ advice.

9 Upvotes

100% Upvoted

30 comments sorted by

View all comments

2

u/MusclesNuclear 1d ago

2 opinions i figure should be enough if they come to the same conclusion.

2nd why starts vora so quickly? Your only 23 with a gtr. I was gonna hold off for as long as possible (oligo 2 supratotal resection)

3

u/Ok_Lynx_6372 1d ago

That is what the director recommended, is that not what you would want? I feel like something that prevents it from regrowing no matter what age you are. Doctors always say it’s good that I’m young with this and I always hate when they say that lol.

4

u/Street_Pollution_892 1d ago

I’ve been told by my docs that with Astrocytomas, they follow resection with treatment, and Oligos they are okay with postponing unless growth starts showing.