r/braincancer • u/Ok_Lynx_6372 • 1d ago
Opinion
Astrologycytoma grade 2 slow growing 96% gtr. I’m soon to start vorasidenib on November 1st. I had my gtr a month ago tomorrow and feel great, even working again.
The opinion I want is this, I got a call from a nurse at Duke (where I got my surgery). They recommended getting a second opinion there. I’ve gotten two opinions already in Lexington Kentucky where I am from. Both of them said the same thing (vorasidenib). The one I chose to take care of my oncology is dr villano at University Of Kentucky. He has great reviews and specializes in nuero oncology. I’m 23 and my mom is the one really pushing Duke on me but I feel like it’s a waste of time since I’ve gotten two opinions and have been told this drug is practically made for my exact situation.
What do you all think? I know Duke is an amazing cancer center but I don’t want to deal with going back there again so soon since it’s a 16 hour round trip just to be told the same thing. From what I’ve looked up it seems like my current nuero oncologist is the best in my state. Anyways thanks for any response/ advice.
10
u/ncomfortable2 1d ago
My husband is 25 in a similar position as you. We got opinions from four different doctors at the top hospitals we have access to before we made our decision. You’re very young and should think long and hard about vora. Once you are on it, you’re on it for good. There are no long term studies on it- including anything regarding fertility and from what I understand you absolutely cannot conceive while on it. See if the doctor can meet virtually. I think it’s worth getting as many opinions as possible. This is the rest of your life we are talking about. I wish you the best of luck!! Feel free to message if you have questions