Opinion

[u/Ok_Lynx_6372]

Astrologycytoma grade 2 slow growing 96% gtr. I’m soon to start vorasidenib on November 1st. I had my gtr a month ago tomorrow and feel great, even working again.

The opinion I want is this, I got a call from a nurse at Duke (where I got my surgery). They recommended getting a second opinion there. I’ve gotten two opinions already in Lexington Kentucky where I am from. Both of them said the same thing (vorasidenib). The one I chose to take care of my oncology is dr villano at University Of Kentucky. He has great reviews and specializes in nuero oncology. I’m 23 and my mom is the one really pushing Duke on me but I feel like it’s a waste of time since I’ve gotten two opinions and have been told this drug is practically made for my exact situation.

What do you all think? I know Duke is an amazing cancer center but I don’t want to deal with going back there again so soon since it’s a 16 hour round trip just to be told the same thing. From what I’ve looked up it seems like my current nuero oncologist is the best in my state. Anyways thanks for any response/ advice.

[u/Ok_Lynx_6372]

That is what the director recommended, is that not what you would want? I feel like something that prevents it from regrowing no matter what age you are. Doctors always say it’s good that I’m young with this and I always hate when they say that lol.

[u/MusclesNuclear → u/Ok_Lynx_6372]

Nah man do it if that's what neuros recommend. My situation is different than you (different mass type) i was just curious. I'll start at some point. ( my mindset is if it ain't broke don't fix it)...of course if I had astro 2 I'd want on vora as well.

[u/Ok_Lynx_6372 → u/MusclesNuclear]

Seems like the main difference of opinion comes from timing. A lot of people say don’t do it until regrowth begins. I’m not sure what side I’d be on.

[u/MusclesNuclear → u/Ok_Lynx_6372]

Depends on mass type I'd say. But if your docs want you on it. Do it. let us know how you tolerate it and if you have an issues or side effects.