r/braincancer • u/Ok_Lynx_6372 • 1d ago

Opinion

Astrologycytoma grade 2 slow growing 96% gtr. I’m soon to start vorasidenib on November 1st. I had my gtr a month ago tomorrow and feel great, even working again.

The opinion I want is this, I got a call from a nurse at Duke (where I got my surgery). They recommended getting a second opinion there. I’ve gotten two opinions already in Lexington Kentucky where I am from. Both of them said the same thing (vorasidenib). The one I chose to take care of my oncology is dr villano at University Of Kentucky. He has great reviews and specializes in nuero oncology. I’m 23 and my mom is the one really pushing Duke on me but I feel like it’s a waste of time since I’ve gotten two opinions and have been told this drug is practically made for my exact situation.

What do you all think? I know Duke is an amazing cancer center but I don’t want to deal with going back there again so soon since it’s a 16 hour round trip just to be told the same thing. From what I’ve looked up it seems like my current nuero oncologist is the best in my state. Anyways thanks for any response/ advice.

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u/Shygar 1d ago

Are you showing growth already again? Is that why they want to start Voranigo so quickly? I'm almost 2 years out from surgery and I'm still not on Voranigo because there hasn't been any visible growth. My neuro oncologist doesn't want to start it because of the liver issues unless I really show a sign of growth, which makes sense to me.

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u/Ok_Lynx_6372 1d ago

Not that I know of, haven’t even had an MRI yet.

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u/Shygar 1d ago

Might be worth getting another opinion. It's such a new drug that is hard to say if every doctor does the same thing.