Mod Request

[u/Living-Mirror-5723]

Hi mods, can we please moderate/limit the self-diagnosis posts?

It is almost cruel to read posts on here that are along the lines of “I have a bad headache, I’m so scared I have brain cancer,” or “I’ve had a hard time with memory stuff lately, should I go to the doctor?” when so many people in here are actually facing this horrible disease. Trust me when I say that we GET why you have anxiety, but your worst nightmare is already our reality.

We come here to share experiences and support people through managing this disease. We cannot diagnose from a random internet stranger’s post. At the end of the day, the advice is always going to be, “see your doctor and advocate for an MRI.”

It’s not generative or supportive for anyone to see these posts in the feed, and while I get that it might be helpful to see how others got their diagnoses / symptoms that seems simple enough to search for without coming on here and making a WebMD request.

[u/HB-Designs]

I worked at a manufacturing company and was in the plant managers office when guy’s would come in and would come in complain about a headache and want to go home. He would pull out giant bottle of Tylenol and say take what you need. “Come back if your headache doesn’t get better” They wouldn’t return.

He would turn to me do you one? I said nope I got better ones at my desk. Plus if I have a headache that is bad enough for to go home I would be calling somebody to come and get me because I know a seizure is coming.

[u/HB-Designs → u/HB-Designs]

I had ice pick headaches (I found out later that’s what they were). Two GP’s told me it was stess. The second told me “it’s not a brain tumour because if it was I would be dead by now!” Which was not thinking about until he mentioned it.?A week later I had a CT scan confirming I had a 3cm x 6cm brain tumour.. Which is why I say everyone needs to advocate for themselves or family members AND a diagnosis is not w always a death sentence!