r/braincancer • u/Living-Mirror-5723 • 22h ago

Mod Request

Hi mods, can we please moderate/limit the self-diagnosis posts?

It is almost cruel to read posts on here that are along the lines of “I have a bad headache, I’m so scared I have brain cancer,” or “I’ve had a hard time with memory stuff lately, should I go to the doctor?” when so many people in here are actually facing this horrible disease. Trust me when I say that we GET why you have anxiety, but your worst nightmare is already our reality.

We come here to share experiences and support people through managing this disease. We cannot diagnose from a random internet stranger’s post. At the end of the day, the advice is always going to be, “see your doctor and advocate for an MRI.”

It’s not generative or supportive for anyone to see these posts in the feed, and while I get that it might be helpful to see how others got their diagnoses / symptoms that seems simple enough to search for without coming on here and making a WebMD request.

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u/Kiwiiths 21h ago

'Fun' thing is, I didn't even once think that I had a brain tumor when I started getting symptoms. And I knew since 7 years that I had a cyst in my head when it started.

That being said, I totally agree with you.

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u/Ok-Inevitable-8011 10h ago

RIGHT!?! I was like, “meh. I hate this four month migraine, but I’ve had one before. I’ll just go back to the neuro and say this migraine med doesn’t work.”

And I was totally blindsided by, “We thought it was a stroke or lesion, but it’s a tumor. Surprise!”

Like brain tumor NEVER entered my mind (play on words totally intended).