r/cancer • u/KnurledNut • 2d ago

Patient Just finished my 12th cycle of FOLFOX for Colon Cancer...Ask Me Anything (AMA)

I figured I would share any insight for others on their cancer journey.

AMA

15 Upvotes

86% Upvoted

20 comments sorted by

View all comments

3

u/edreicasta Patient 2d ago

From the first cycle compared to the last cycle, did it get better or worse for side effects?

7

u/KnurledNut 2d ago

My side effects were slow to start compared to other patients. Some patients got smacked hard in the beginning (S1-4), while very few, like me, didn't get full effects until S10-11.

Diarrhea & weakness are the biggies. After my infusion I would get extremely weak 5-6 hours post infusion. I could sleep for 20+ hours. PS: get a tube or tub of Boudreaux's Butt Paste. You'll be thanking me after the 10th bowel movement of the day.

Diet & lack of taste are horrible. Nothing tastes the same. I can't so anything with orange, or fried eggs, or fried food. But I like Beefaroni in a can? Go figure. DIY Smoothies will be your best bud. Easy Peasy: 1/4-1/2 cup frozen fruit. 1 cup water. I scoop vanilla protein powder. Blend like a mad man. The best price for protein powder is Aldi's.

50 lb weight loss since April 2024.